May 6, 2023
In
Our stories
Malu
It was just days after Christmas in 2019 when one-year-old Malu began exhibiting unusual behaviours – that to his family, first looked like the signs of an overtired baby. The extended family had gathered to celebrate, the day after boxing day, when baby Malu appeared to...
May 6, 2023
In
Our stories
Paige
Born in 2014, Paige was a bright eyed and active baby beloved by her older brother Byron and mother Kelly. It was when she was just five-month-olds when Paige began to heavily favour her left hand when grasping for her favourite toys. “It was more than...
May 6, 2023
In
Our stories
Oliver
Oliver, born in 2016, was just eight weeks old when his mother Lisa first noticed concerning symptoms in her new baby. Hard to detect at first, Oliver began suffering short breath-holding spells that increased in frequency as he grew. “He would hold his breath as a baby...
March 30, 2019
In
Our stories
Natalie Hood-Bourke 1965-2019
On 20 March 2019, we lost our committee member and past President, Natalie Hood-Bourke. Natalie was our President from 2014-16 and was a tireless advocate for our Foundation and her daughter Alicia, who underwent a hemispherectomy at age 10. Prior to dedicating her life to...
June 20, 2018
In
Featured
HEMICON Australia, 2019
Our 2019 conference was another great event for the Australian hemispherectomy community....
September 3, 2017
In
Our stories
Thomas
Thomas had a stroke in utero 24-48 hours prior to birth resulting in left hemiplegic cerebral palsy, and epilepsy onset at age four....
September 3, 2017
In
Our stories
Indi
When Indi was just three days old, we were told she had suffered a stroke (we later found out that this occurred sometime in the third trimester)...
May 27, 2017
In
Our stories
Shakaia
Who would ever have thought that someone could function off half a brain! I would never have thought it would be possible nor would I have ever thought that I would have a child that would go through numerous brain surgeries and the outcome be...
April 4, 2017
In
Our stories
Gianni
Gianni was born in Melbourne on May 28, 1998, with impressively sized hands and feet. We were told he’d be a six-footer, for sure. A full-term bub, he weighed 8lbs 8oz but at a very long 58cm, he looked like a 10-pounder who hadn’t filled out. As...
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