Rory is a bright and cheerful 17 year old boy who lives in Camden NSW with his family. He is an only child. Rory had a left anatomical hemi in February 2001 to cure Rasmussen’s Encephalitis and he is now doing remarkably well. At age 4...
It was a beach holiday in 2005 when life for our family changed irrevocably. We had left Melbourne for Byron Bay with our two young daughters, Freya aged six and Ella aged three. Both girls were in, and always had been in great health. Freya had just started...
Georgia began life as a normal, cheeky and sporty little girl. There was no activity that she wouldn’t want to try. Her special loves were swimming and soccer. At the age of 7, two weeks after she had been knocked out by an over ambitious soccer boot mistaking...
Gemma was a healthy, happy five year old in 2004 attending pre-school 3 days a week and very much looking forward to “big school” the following year. At work I received a phone call from the preschool teacher saying that Gemma had fallen off a chair...
October 2012 Aaron aged 14 years and 11 months had a left anatomical hemisphectomy as the only treatment for the debilitating and rare neurological disease called Rasmussen’s Encephalitis (RE). T here was little to no indication in 2006 that things were going to change for Aaron; he was...
Max is our gorgeous little boy, now 4, and together with his twin brother Flynn terrorises the neighbourhood as only little boys can, where we live in Brisbane, Qld. Max had a left hemispherectomy in March 2010 when he was 10 months old due to...
Karley was born in Queanbeyan NSW on 21st April 1998 by caesarean section. At 11weeks old I noticed her face seemed to be asymmetric. I was a little concerned that something didn’t seemed right. Could it be a possible allergic reaction or spider bite? After...
We live in Lake Macquarie area, near Newcastle NSW and have 2 boys aged 19 and 20 and Alicia who is 13. Our beautiful daughter was born in 2000 with Erbs Palsy of the left arm and at 3 mths old she was diagnosed with...