DONATE AND MAKE A DIFFERENCE

 
Hemispherectomy Foundation AU/NZ | Connect & Resources
332
page-template,page-template-full_width,page-template-full_width-php,page,page-id-332,page-parent,,select-child-theme-ver-1.0.0,select-theme-ver-3.7,wpb-js-composer js-comp-ver-5.0.1,vc_responsive

Connect & Resources

Here you will find information to help guide you on your family’s journey.

Our sister organisation PESA, Pediatric Epilepsy Surgery Alliance, supports us by providing information to assist families.

https://epilepsysurgeryalliance.org/

The Hemispherectomy Foundation AU/NZ operates a closed Facebook group to protect the privacy of those participating.

If you would like to join the group please email – info@hemispherectomyaustralia.org.au
and we will send you an invitation.

Have you joined the Global Pediatric Epilepsy Surgery Registry?

The Global Pediatric Epilepsy Surgery registry is a research project that allows families to share their experiences with and without epilepsy surgery in childhood by completing a series of surveys. The data collected will be used to answer some of the most important questions about pediatric epilepsy surgery, such as:

  • What can a child do over time after epilepsy surgery?
  • What post-operative therapies and interventions are useful?
  • What are some unusual symptoms or medical issues that happen after epilepsy surgery that parents report but doctors may be unaware of?
  • What are the issues that concern parents?
  • What is the impact of epilepsy surgery on a child’s quality of life?
  • What surgical techniques work best and for whom?

REGISTER YOUR CHILD HERE: Global Pediatric Epilepsy Surgery Registry (epilepsysurgeryalliance.org)