Category: Stories

It was just days after Christmas in 2019 when one-year-old Malu began exhibiting unusual behaviours – that to his family, first looked like the signs of an overtired baby. The extended family had gathered to celebrate, the day after boxing day, when baby Malu appeared to ‘zone out’. “His head lulled and then his eyes … Read More “Malu” »

Born in 2014, Paige was a bright eyed and active baby beloved by her older brother Byron and mother Kelly. It was when she was just five-month-olds when Paige began to heavily favour her left hand when grasping for her favourite toys. “It was more than a left or right hand thing. Paige kept her … Read More “Paige” »

Oliver, born in 2016, was just eight weeks old when his mother Lisa first noticed concerning symptoms in her new baby. Hard to detect at first, Oliver began suffering short breath-holding spells that increased in frequency as he grew. “He would hold his breath as a baby and then come around again, I saw paediatrician … Read More “Oliver” »

Thomas had a stroke in utero 24-48 hours prior to birth resulting in left hemiplegic cerebral palsy, and epilepsy onset at age four.

When Indi was just three days old, we were told she had suffered a stroke (we later found out that this occurred sometime in the third trimester)

Who would ever have thought that someone could function off half a brain! I would never have thought it would be possible nor would I have ever thought that I would have a child that would go through numerous brain surgeries and the outcome be such a successful and a positive one.

Gianni was born in Melbourne on May 28, 1998, with impressively sized hands and feet. We were told he’d be a six-footer, for sure. A full-term bub, he weighed 8lbs 8oz but at a very long 58cm, he looked like a 10-pounder who hadn’t filled out. As soon as he arrived, Gianni had a right-sided … Read More “Gianni” »

Rory is a bright and cheerful 17 year old boy who lives in Camden NSW with his family. He is an only child. Rory had a left anatomical hemi in February 2001 to cure Rasmussen’s Encephalitis and he is now doing remarkably well. At age 4 and a half, in June 2000, Rory had an … Read More “Rory” »

It was a beach holiday in 2005 when life for our family changed irrevocably.  We had left Melbourne for Byron Bay with our two young daughters, Freya aged six and Ella aged three.  Both girls were in, and always had been in great health. Freya had just started school and celebrated her sixth birthday.  She was a happy, even-tempered … Read More “Freya” »

Georgia began life as a normal, cheeky and sporty little girl.  There was no activity that she wouldn’t want to try.  Her special loves were swimming and soccer.  At the age of 7, two weeks after she had been knocked out by an over ambitious soccer boot mistaking her head for the ball, Georgia had her first … Read More “Georgia” »