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HemiConnect Newsletter

November 25, 2025 kelly Comments Off on HemiConnect Newsletter

Our HemiConnect newsletter keeps our Australian and New Zealand hemispherectomy community up-to-date with everything happening in the the hemispherectomy world. From celebrating the achievements of our hemi heroes, letting you know about events, including our biennial HemiCon, the newsletter also provide information on new hemispherectomy-related research and research opportunities. HemiConnect is essential reading for our […]

Community

State Representatives 

November 11, 2025 kelly Comments Off on State Representatives 

Hemispherectomy families are located across Australia and New Zealand, and we are very pleased to offer families in each State and Territory (except Northern Territory) the opportunity to connect with one of our state representatives.  Our state representatives can help support hemispherectomy families and connect them to other families located within their state or territory.  […]

Community

Facebook Support Group 

November 11, 2025 kelly Comments Off on Facebook Support Group 

Hemispherectomy Foundation Australia operates a closed group on Facebook.  It is a supportive and safe space for Australian and New Zealand families impacted by hemispherectomy.  As a private group, families can feel comfortable knowing they can share stories, successes or struggles in a group where everyone “gets it”.    The Facebook group is empathetic, respectful and […]

Community

Parent Support Navigators 

November 11, 2025 kelly Comments Off on Parent Support Navigators 

Navigating the journey to and following hemispherectomy is difficult, and no parent, family member or caregiver should feel that they are alone.    Our parent support navigators are there for you to reach out to for support, advice or to listen.  They are trained and certified by the Paediatric Epilepsy Surgery Alliance in the United States. […]

Healthcare

Hope in One Hemisphere — HFA at the Kids Rehab Conference 2025

November 9, 2025 kelly Comments Off on Hope in One Hemisphere — HFA at the Kids Rehab Conference 2025

It was an absolute pleasure to join Dr. Stephanie Smith at her presentation today at the Kids Rehab Conference 2025. Dr. Smith shared a powerful presentation — “A retrospective review of the functional outcomes of children from Queensland Children’s Hospital (QCH) who underwent a hemispheric separation neurosurgery for medically refractory epilepsy from 2014 to 2022.” […]

Healthcare

HFA at the 17th National Paediatric Bioethics Conference: Advocating for Ethical Care and Inclusion

October 21, 2025 kelly Comments Off on HFA at the 17th National Paediatric Bioethics Conference: Advocating for Ethical Care and Inclusion

Earlier this September, Hemispherectomy Foundation Australia (HFA) proudly attended the 17th National Paediatric Bioethics Conference held at the Royal Children’s Hospital in Melbourne. This prestigious event brought together clinicians, ethicists, researchers, and advocates from across Australia to explore the ethical dimensions of paediatric healthcare, with this year’s theme focusing on “Working Through Ethical Challenges: From Theory to Practice.” […]

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