Navigating the journey to, and following hemispherectomy is difficult, and no parent, family member or caregiver should feel that they are alone.
Our parent support navigators are here for you to reach out to to provide support and to listen. Our parent support navigators are trained and certified by the Paediatric Epilepsy Surgery Alliance in the United States. They can help with the many emotions and questions you may have about your child’s hemispherectomy surgery journey.
Our parent support navigators are trained in the following core competencies:
- Evidence-based peer support practices
- Support for the four stages of adaptation in parenting a child with disability
- Confidentiality, respect, and professionalism
If you would like to contact a parent support navigator, please contact us using our contact form on the website.